Here we go! Tonight while I was changing Alex's diaper and getting him ready for a bottle, I noticed what I thought was a tear near his nose, under his "bump". I wiped it off, casually, and noticed that it came back in the same exact spot. I was a bit alarmed, and was thinking that it wasn't good, but called Jeremiah in to look and wiped it again with some gauze. Some more clear fluid came back in the same spot. I called Sarah, and we talked about what it could be, most likely spinal fluid. "Oh no, I am not ready to leave for Sacramento right now", is what I was thinking! We packed up the kids and drove over to Sarah's house, about a ten minute trip, and had the encephalocele expert have a peek. Sure enough, in her opinion it was seeping and Alex should go to the doctor. Any bacteria that could get in there could cause serious infection or meningitis. I called the doctors' assistants in Sacramento and the airline about changing my flight. Alex and I are leaving in the middle of the night to drive to the airport with Jeremiah and our youngest child. He and she are dropping us off at the airport around 5:30 am, and Alex and I will be flying to Sacramento at 7! I am almost completely packed, and meanwhile the leak near his bump has stopped seeping. He is asleep and acting fine. The doctor said he needs to be seen, but it's not an emergency so we should be ok. The assistant is even picking me up at the airport, and they are trying to work out my stay at the house on campus at the hospital.
Of course pray for Alex, for his health and surgery, if that is what they decide to do (hopefully since we will be down there!)
Pray for my kids and husband at home, and my friend who will be helping watch them while hubby is working 12 hour shifts beginning Friday.
Pray that I will be able to find free lodging, even if I can stay in the room with Alex overnight!
Pray that we won't have to be gone very long, but that everything that needs to be accomplished will be!
Pray that I will be a good advocate for Alex, and that the right decisions will be made for his care.
Pray that I will feel better, as I am in the beginning stages of a cold.
Well that's all for now. I will try to keep you informed!